Contributions
Abstract: S503
Type: Oral Presentation
Presentation during EHA22: On Saturday, June 24, 2017 from 16:30 - 16:45
Location: Room N109
Background
Cancer patient support groups appear to provide an important source of support to many patients and carers. In recent years there has been an increasing focus in the UK for services to provide cancer support groups, however it is unclear what proportion of patients believe access to these support groups would improve their experience of living with and beyond cancer.
Aims
A patient experience survey was undertaken by the Haematology-Oncology GMCPB across 10 NHS hospital trusts, where there are a number of cancer support groups.
Methods
The sample for the survey included all adult (aged >16) patients with a confirmed diagnosis of a haematological cancer who attended a haematological oncology outpatient appointment during a 4 month period (June-September 2016). The survey was available for competition on paper or online and was completed anonymously. A translation/interpretation facility was not provided for patients whose first language was not English (due to funding restraints).
Results
277 responses were returned with 1 response excluded (non-haematological malignancy). Haematological diagnoses included acute leukaemia (n=40), chronic leukaemia (n=35), lymphoma (n=62), myeloma (n=102), MDS (n=15), MPD (n=12), other (n=2) and not specified (n=7). 257 (93.1%) patients had received anticancer therapy, 218 (79%) were receiving treatment at the time of survey and 54% had ongoing symptoms related to their treatment or cancer. 197 (71.4%) patients did not want access to a support group, 23 (19%) wanted access, 51 (8.3%) were not aware of the possibility and 6 (1.8%) did not respond. 51.8% of patients were aware of the existing support groups, 38.8% were not sure, 2.9% were not aware and 1.8% did not respond.
Conclusion
Our results suggest that a large majority of patients with a haematological malignancy do not want access to a cancer support group but providing satisfactory support through key workers and other health care professionals is likely to achieve better patient experiences.
Session topic: 35. Quality of life, palliative care, ethics and health economics
Keyword(s): Supportive care, Quality of Life, Hematological malignancy
Abstract: S503
Type: Oral Presentation
Presentation during EHA22: On Saturday, June 24, 2017 from 16:30 - 16:45
Location: Room N109
Background
Cancer patient support groups appear to provide an important source of support to many patients and carers. In recent years there has been an increasing focus in the UK for services to provide cancer support groups, however it is unclear what proportion of patients believe access to these support groups would improve their experience of living with and beyond cancer.
Aims
A patient experience survey was undertaken by the Haematology-Oncology GMCPB across 10 NHS hospital trusts, where there are a number of cancer support groups.
Methods
The sample for the survey included all adult (aged >16) patients with a confirmed diagnosis of a haematological cancer who attended a haematological oncology outpatient appointment during a 4 month period (June-September 2016). The survey was available for competition on paper or online and was completed anonymously. A translation/interpretation facility was not provided for patients whose first language was not English (due to funding restraints).
Results
277 responses were returned with 1 response excluded (non-haematological malignancy). Haematological diagnoses included acute leukaemia (n=40), chronic leukaemia (n=35), lymphoma (n=62), myeloma (n=102), MDS (n=15), MPD (n=12), other (n=2) and not specified (n=7). 257 (93.1%) patients had received anticancer therapy, 218 (79%) were receiving treatment at the time of survey and 54% had ongoing symptoms related to their treatment or cancer. 197 (71.4%) patients did not want access to a support group, 23 (19%) wanted access, 51 (8.3%) were not aware of the possibility and 6 (1.8%) did not respond. 51.8% of patients were aware of the existing support groups, 38.8% were not sure, 2.9% were not aware and 1.8% did not respond.
Conclusion
Our results suggest that a large majority of patients with a haematological malignancy do not want access to a cancer support group but providing satisfactory support through key workers and other health care professionals is likely to achieve better patient experiences.
Session topic: 35. Quality of life, palliative care, ethics and health economics
Keyword(s): Supportive care, Quality of Life, Hematological malignancy